FAQS
- If I donate money to The Kortney Rose Foundation (KRF) is it tax deductible?
Yes, The Kortney Rose Foundation, Inc. is a registered 501(c) (3) non profit organization. Information filed with the Attorney General concerning this charitable solicitation may be obtained from the attorney general of the State of New Jersey (973) 504-6215. Contributions are tax deductible to the fullest extent permitted by law. ID#20-5350807 - What institution(s) will receive the donations accrued by the Kortney Rose Foundation?
The Kortney Rose Foundation donates annually since 2007 to the pediatric brain tumor research being done at The Children's Hospital of Philadelphia, specifically for their Large-Scale Genomics Project that will hunt genes behind common childhood diseases. KRF's donated dollars go specifically to the doctors who are using this research to find the genes behind brain tumors and use the gene knowledge to guide therapy, devise new tests and treatments.
- How can I contribute to the Kortney Rose Foundation?
You may contribute in many different ways. You may mail us a donation or donate online through Paypal. We are always looking for volunteers to help with our annual functions, as well as, sponsorship and product donations. Please see the "Upcoming Events" section for information and/or for sponsorship opportunities the "Sponsors" section.
- Why did you choose the Children's Hospital of Philadelphia (CHOP) as the recipient of your donations?
Dr. Phillips is the head of neuro-oncology at CHOP. He is in charge of the research that goes on in the pediatric brain tumor realm. Dr. Phillips not only has an unbelievable resume including Sloan Kettering, Boston Children's Hospital, and Johns Hopkins, he is a passionate man when it comes to his patients and research. Having had the opportunity to work at many other institutions he chose CHOP because he believes it to be the best in the pediatric field. He is not alone in that belief. In 2006, U.S. News & World Report named CHOP the #1 Children's Hospital in the Country for a 4th year in a row. The level of care that Kortney and our entire family received while at CHOP was amazing. 100% of the money we give to them will go to research. CHOP researchers work closely with other institutions who are all working together toward the same goals. Below is a letter from Dr. Maris explaining further:
I think what your donors would need to know is the following:
The future of childhood brain cancer treatment lies in our ability to determine the genetic Achilles' heel for each child’s tumor when he or she is diagnosed. We now have the technology to take even a tiny biopsy sample and determine which critical genes (the accelerators and breaks for all normal brain cells) are mutated or changed in a way that allows a cancer to first occur, grow and spread. Knowing this information provides two critical things. First, we can get a much more precise idea of how aggressive the tumor is, and thus can give a more realistic prognosis. More importantly, we are now on the verge of using this information to individualize therapy and to provide for each individual child a more precise set of medicines designed to interfere with the specific genetic mutations in his or her cancer. This should lead to more effective and much less toxic therapies. Dr. Phillips work is focused on this type of personalized medicine, and he and Dr. Tom Curran have made tremendous progress. They are on the verge of even greater discoveries as well as implementing this sort of program for all children with brain tumors at CHOP, and elsewhere in the country.
Sincerely,
John
John M. Maris, MD
Giulio D'Angio Associate Professor of Pediatrics
Acting Chief, Division of Oncology
Director, Center for Childhood Cancer Research
Children's Hospital of Philadelphia
University of Pennsylvania School of Medicine
